Description

IndoUSrare is a global rare disease advocacy and research organization working to address systemic gaps in representation, data visibility, and access to innovation. Focused on collaboration between India and the United States, the organization engages researchers, policymakers, industry leaders, and patient advocacy groups to improve clinical trial inclusion, strengthen epidemiological understanding, and support policy frameworks that advance equitable healthcare solutions. Through cross border partnerships and ecosystem building efforts, IndoUSrare aims to ensure that rare disease communities are better represented in research and more effectively connected to emerging therapies.